Getting Patients Involved in Clinical Trials

HomePatientsLung Disease Week at the ATS2023 ▶ Getting Patients Involved in Clinical Trials
Getting Patients Involved in Clinical Trials


Welcome Message

Thank you for joining us for the American Thoracic Society (ATS) Lung Disease Week, a forum designed to provide education and support for the millions of individuals living with respiratory, sleep-related, and critical care conditions. As one of the premiere professional societies focused on lung diseases, sleep disorders, critical care medicine and mental and physical health, the ATS’s Lung Disease Week program provides a platform for individuals to interact directly with experts in these fields to learn more about their conditions, understand the research landscape that drives advancements in their disease, and share their lived experience of these diseases with researchers and clinicians.  

The focus of this iteration of the Lung Disease Week program  is on getting patients involved in clinical trials. One of the goals of clinical trials is to determine if new therapies or treatments work and are safe. Join us to learn more about what is involved in therapeutic development, how patients can become more involved, and what being enrolled in a trial means.  We are delighted you are able to join us for ATS Lung Disease Week "Getting Patients Involved in Clinical Trial” and invite you to participate in future ATS Lung Disease Weeks programming.


Matt J. Granato, LLM., MBA
President & CEO
Pulmonary Hypertension Association
Member, ATS Public Advisory Roundtable


Jennifer Mefford
Vice President of Corporate Partnerships
Pulmonary Fibrosis Foundation
Member, ATS Public Advisory Roundtable


Michele Manion
President and Executive Director of the PCD Foundation
Primary Ciliary Dyskinesia
Immediate PAst Chair, ATS Public Advisory Roundtable (PAR)

 ATS Getting Patients Involved in Clinical Trials


PHA is a 501(c)(3) nonprofit organization that relies on donations to fund its many programs, including a network of 200-plus patient and caregiver support groups, lifesaving early diagnosis awareness and education programs, specialty care resources, and research to prevent and cure PH.


Founded in 2000 by brothers Albert Rose and Michael Rosenzweig, PhD, the Pulmonary Fibrosis Foundation is a 501(c)(3) nonprofit organization dedicated to identifying effective PF treatments and assisting those living with the disease. The brothers experienced firsthand the devastating effects of PF when their sister Claire passed away from the disease.  Both brothers were also diagnosed with PF, and it was their vision and dedication that led to the creation of the Foundation.