Tuberous Sclerosis

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Information for Patients


lungInformation for Patients

What is TSC?

Signs and Symptoms of TSC

Because TSC affects no two people the same, there is no sure way to predict where and how the disorder will manifest throughout the body and a patient’s lifetime.

Consensus Guidelines for Diagnosis, Surveillance and Management of TSC

In 2012, the International Tuberous Sclerosis Complex Consensus Conference reviewed prevalence and specificity of TSC-associated clinical manifestations and updated the TSC diagnostic criteria from 1998.   Clinical features of TSC continue to be a principal means of diagnosis but include additional clarification and simplification.  In addition, TSC may now be diagnosed via genetic testing.

How Can TSC Affect Lungs?

ATS Patient Information Series

Pulmonary Rehabilitation

Oxygen Therapy