Pulmonary Fibrosis Week

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Information for Patients

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lungInformation for Patients

 

The Pulmonary Fibrosis Foundation’s (PFF) Patient Communication Center is a hub for information and resources for patients, families, and healthcare professionals. Call 844.TalkPFF (844.825.5733) or email pcc@pulmonaryfibrosis.org.

Patient Educational Materials

The PFF has educational resources including our Pulmonary Fibrosis Information Guide, resources for supplemental oxygen, and more. Hard copies of these materials are available for free through our Patient Communication Center.

Educational Videos

Watch videos from our Life With Pulmonary Fibrosis Video Series, Disease Education Webinar Series, Advocacy in Action Webinar Series, and recordings from past PFF Summit sessions to learn more about a variety of topics. These educational videos can be accessed on the PFF website or on the PFF YouTube Channel.

Find Medical Care

The PFF’s Care Center Network is comprised of 68 medical centers nationwide offering comprehensive and individualized care to those living with PF.

Support Groups

There are over 150 volunteer groups around the country providing a safe environment for those affected by PF to share their experiences. The PFF hosts three telephone based support groups each month: PFF Voices, a call-in support group for anyone affected by pulmonary fibrosis; PFF Caring Conversations, a call-in support groups specifically for caregivers of individuals with pulmonary fibrosis; and PFF Coloquio, a call-in support group for Spanish-speaking members of the PF community.

Treatment Options

Learn about different treatment options and ways to manage symptoms. 

PFF Clinical Trial Finder

The clinical trial finder is a searchable tool on the PFF website for people living with pulmonary fibrosis, their caregivers, and loved ones to learn about clinical research opportunities in close proximity to their home.

PF Drug Development Pipeline

The PF Drug Development Pipeline is a tool that allows viewers to filter interventions, such as novel drugs or devices that are in development or have been approved for the U.S. market, by relevant areas of interstitial lung disease.

ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.

ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one's personal health care provider.

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