Lung Scarring and Fibrosis

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Information for Patients



lung Information for Patients


Pulmonary Fibrosis Information Guide

This guide gives patients, caregivers, and medical professionals comprehensive information about pulmonary fibrosis, treatment options, tips for monitoring your health, and ways to maintain your care. This guide is ideal for those who are newly diagnosed or wish to learn more about this disease. 

Oxygen Basics Booklet 

This booklet provides an in-depth overview of the basics of supplemental oxygen use, including equipment, getting started, Medicare information, and tips for traveling with oxygen. 

Pulmonary Rehabilitation Toolkit

This series of eight online modules developed by the PFF and the American Association of Cardiovascular and Respiratory Care offers an opportunity to participate in an exercise program at home, at your own pace.  Talk with your health care provider before starting any new exercise routine to make sure that it is safe and appropriate for you.

Telemedicine Basics 

This booklet provides information for patients who would like to learn how to connect with a healthcare provider in a virtual format via smartphone, tablet, laptop, or desktop computer.

Genetic Testing for Pulmonary Fibrosis - a PFF Position Statement for Patients  

This online resource from the PFF provides guidance from medical experts for those who are concerned about the presence of disease in their family. 

Hermansky-Pudlak Syndrome and Lung Transplantation: A Single Center Case Study

HPS Standard of Care

HPS Research

HPS Media Library

Flavia’s Journal Club


ATS Patient Information Series

The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM ( The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one's personal health care provider.