Information for Patients
Pulmonary Fibrosis Information Guide
This guide gives patients, caregivers, and medical professionals comprehensive information about pulmonary fibrosis, treatment options, tips for monitoring your health, and ways to maintain your care. This guide is ideal for those who are newly diagnosed or wish to learn more about this disease.
Oxygen Basics Booklet
This booklet provides an in-depth overview of the basics of supplemental oxygen use, including equipment, getting started, Medicare information, and tips for traveling with oxygen.
Pulmonary Rehabilitation Toolkit
This series of eight online modules developed by the PFF and the American Association of Cardiovascular and Respiratory Care offers an opportunity to participate in an exercise program at home, at your own pace. Talk with your health care provider before starting any new exercise routine to make sure that it is safe and appropriate for you.
Telemedicine Basics
This booklet provides information for patients who would like to learn how to connect with a healthcare provider in a virtual format via smartphone, tablet, laptop, or desktop computer.
Genetic Testing for Pulmonary Fibrosis - a PFF Position Statement for Patients
This online resource from the PFF provides guidance from medical experts for those who are concerned about the presence of disease in their family.
Hermansky-Pudlak Syndrome and Lung Transplantation: A Single Center Case Study
HPS Standard of Care
HPS Research
HPS Media Library
Flavia’s Journal Club
ATS Patient Information Series
The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one's personal health care provider.
- What is Hermansky-Pudlak Syndrome?
- What Is Idiopathic Pulmonary Fibrosis?
- Medications for Idiopathic Pulmonary Fibrosis
- Nondrug Treatments for Idiopathic Pulmonary Fibrosis
- What is Lung Transplantation?
- Bronchiolitis Obliterans Syndrome (BOS) Following Lung Transplant
- Oxygen Therapy
- Pulmonary Function Tests
- Exercise with Lung Disease
- Pulmonary Rehabilitation
