chILD Week


Welcome Message

Childhood Interstitial Lung Diseases (chILD) is the focus of this week’s “Lung Disease Week at the ATS.”  The American Thoracic Society is thrilled to partner with the Children’s Interstitial Lung Disease (chILD) Foundation in celebration of chILD Week!

Childhood interstitial lung disease (chILD) is a broad term for a heterogeneous group of rare lung diseases that affect infants and children.  Although individually rare, it is estimated that there are more than 200 disorders are classified within this group.  Some forms of chILD overlap with ILD in adults in diseases related to the immune system, hypersensitivity pneumonitis, and bronchiolitis obliterans. Other causes more specific to children include Neuroendocrine cell hyperplasia of infancy (NEHI), Pulmonary interstitial glycogenosis (PIG), surfactant disorders, and abnormalities in lung growth and development. 

Significant advances in our understanding of chILD have occurred over the past decade.  The ATS Clinical Practice Guideline has been transformative in the classification, evaluation, and management of chILD.  The more recent establishment of a chILD Registry enables researchers to follow patients with chILD longitudinally, providing long-term insights into the natural history and response to treatment in these rare disorders.  Partnership of the chILD Foundation and the ATS Foundation has been instrumental in funding support for research and education focused on chILD. 

We welcome “Childhood Interstitial Lung Diseases at the ATS” and hope that this awareness campaign will highlight advances that will benefit families, clinicians, and researchers.




Paul Moore, MD
Professor of Pediatrics and Pharmacology
Vanderbilt University School of Medicine


Greg Porta
Founder and President, chILD Foundation
Immediate Past Chair, ATS Public Advisory Roundtable (PAR)





The mission of the chILD Foundation is to accelerate research to cure all forms of Children's Interstitial and Diffuse Lung Disease (chILD) and to provide compassionate support, education, and hope to children and families affected by these life-altering diseases.