Throughout 2018, the ATS Public Advisory Roundtable (PAR) is hosting its eighth annual "Lung Disease Week at the ATS" series, a society-wide initiative that recognizes the many rare lung disorders for which ATS PAR member organizations provide support and guidance to patients and their families. For a series of one week periods, ATS PAR brings patient issues to the front and center of the Society's agenda. Working with its PAR partners, the ATS develops, aggregates, and hosts links to disease-specific content on its web site
Feb 4-10—Rare Lung DiseasesPAR Member — Jack Kelly (Lymphangiomatosis & Gorhams Disease Alliance) |
Mar 4-10—LAMPAR Member — Mary Harbaugh (LAM Foundation) |
Apr 1-7—SarcoidosisPAR Member — Ginger Spitzer (Foundation for Sarcoidosis Research) |
Apr 15-22—Hermansky Pudlak Syndrome*PAR Member — Donna Appell (HPS Network) |
Jun 3-9—SclerodermaPAR Member — Kerri Connolly (Scleroderma Foundation) |
Jun 17-23—Nontuberculous MycobacteriaPAR Member — Susan Wisliceny (NTM Info & Research) |
Jul 15-21—Primary Ciliary DyskinesiaPAR Member — Michele Manion (PCD Foundation) |
Aug 5-11—Asthma/Allergy*PAR Member — Tonya Winders (Allergy and Asthma Network) |
Aug 19-25—Pulmonary FibrosisPAR Member — Jennifer Mefford (Pulmonary Fibrosis Foundation) |
Sep 9-15—chILDPAR Member — Greg Porta (chILD Foundation) |
Sep 23-29—Lung TransplantPAR Member — Jeff Goldstein (Lung Transplant Foundation) |
Oct 7-13—Lung Cancer*PAR Member — Andrea Ferris (LUNGevity Foundation) |
Oct 21-27—Cystic FibrosisPAR Member — Sue Landgraf (Cystic Fibrosis Research, Inc.) |
Nov 11-17—Tuberous Sclerosis ComplexPAR Member — Kari Rosbeck (Tuberous Sclerosis Alliance) |
Dec 2-8—Alpha-1/COPD*PAR Member — Karen Erickson (Alpha-1 Foundation) |
* Will also include an in-the-field patient education day event
For more information on Lung Disease Week at the ATS, please contact Courtney L. White, CAE, Director of Patient Outreach & Tobacco Control at cwhite@thoracic.org or (212) 315-8640.