Tuberous Sclerosis

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Information for Patients

Tuberous Sclerosis

Lung Information for Patients

Patient Resources

The Tuberous Sclerosis Alliance website offers a wealth of information and resources for patients and their caregivers, healthcare providers and researchers.

How is Tuberous Sclerosis Complex Diagnosed?

Clinical features of tuberous sclerosis complex continue to be a principal means of diagnosis but include additional clarification and simplification. In addition, tuberous sclerosis complex may now be diagnosed via genetic testing

For the Newly Diagnosed

If someone in you know has been recently diagnosed with tuberous sclerosis complex, the Tuberous Sclerosis Alliance is here to help.

Community Alliances

More than 30 volunteer-drive Community Alliances across the United States offer people with tuberous sclerosis complex local support and resources.

Tuberous Sclerosis Clinics

The Tuberous Sclerosis Alliance recognizes 49 TSC Clinics in the United States and three in Israel

Clinical Trials

TSC research is critical for identifying new treatments and to pursue a cure. This page provides a list of current clinic trials and links to an introduction to clinical trials

Medical Providers

Tuberous sclerosis complex may affect nearly every organ system, but disease manifestations vary widely among affected individuals and some can be life threatening. This page provides a brief summary of the latest consensus recommendations for monitoring and treating individuals with TSC.