Lung Disease Week at the ATS represents a society-wide initiative to recognize the many rare lung disorders for which ATS PAR member organizations provide support and guidance to patients and their families. For a series of one-week periods throughout the year, ATS PAR brings patient issues to the front and center of the Society's agenda.
Working with its PAR partners, the ATS develops, aggregates and hosts links to disease-specific content on its Web site. Material includes patient stories, testimonials, interviews, videos, photos, support group information, details on ongoing legislative efforts and clinical trial updates. The ATS fosters interaction between patients, clinicians and researchers by hosting online question-and-answer sessions, Webinars and/or podcasts featuring lung disease experts.
Feb 8-14 — SarcoidosisPAR Member — Andrea Wilson (Foundation for Sarcoidosis Research) |
Mar 1-7 — Pulmonary FibrosisPAR Member — Teresa Barnes (Coalition for Pulmonary Fibrosis) |
Mar 22-28 — Rare Lung Diseases IPAR Member — Donna Appell (Hermansky Pudlak Syndrome Network) |
Apr 5-11 — chILDPAR Member — Greg Porta (chILD Foundation) |
Apr 19-25 — Tuberous SclerosisPAR Member — Kari Rosbeck (Tuberous Sclerosis Alliance) |
Jun 7-13 — SclerodermaPAR Member — Kerri Connolly (Scleroderma Foundation) |
Jun 21-27 — Cystic FibrosisPAR Member — Beth Sufian (Cystic Fibrosis Foundation) |
July 12-18 — Pulmonary HypertensionPAR Member — Debbie Castro (Pulmonary Hypertension Association) |
Aug 2-8 — Rare Lung Diseases IIPAR Member — Jack Kelly (Lymphangiomatosis & Gorham’s Disease Alliance) |
Aug 23-29 — LAMPAR Member — Mary Harbaugh (The LAM Foundation) |
Sep 13-19 — Alpha-1 Antitrypsin DeficiencyPAR Member — Karen Erickson (Alpha-1 Foundation) |
Oct 4-10 — AsthmaPAR Member — Charlotte Collins (Asthma & Allergy |
Oct 18-24 — Nontuberculous MycobacteriaPAR Member — Susan Wisliceny (NTM Info & Research) |
Nov 8-14 — COPDPAR Member — Jean Rommes (EFFORTS - Emphysema Foundation) |
Dec 6-12 — Lung TransplantPAR Member — Jeff Goldstein (Lung Transplant Foundation) |