Name of questionnaire | Restless Legs Syndrome Quality of Life Questionnaire (RLSQoL) |
Type of questionnaire-description,age | Assesses the impact of restless legs symptoms on daily life, emotional well-being, social life and work life in adults 21 years and over. Additional validation in adults 18 years and over.2.6 |
Number of items | 18 |
Number of domains & categories | Ten of the items contribute to a single summary score, the overall life impact score. The remaining eight items concern employment (one question), sexual interest (two questions) and work (five questions). |
Description of categories/domains | Assessment of how RLS impacts daily activity, morning and evening activity, concentration, sexual activity, and work over the previous 4 weeks. |
Scaling of items | 13 are scored on a 5-point scale which can be transformed to a 0-100 score, lower scores indicating worse quality of life. The remainder items are recorded as either a numerical value or a dichotomous response. |
Scoring test-retest reliability | Yes (intraclass correlation coefficient = 0.79 in the total sample, 0.84 for patients with stable symptoms)1 |
Scoring Internal consistency | Yes (Cronbach's alpha = 0.92)1 |
Validity | Yes, item-convergent validity; concurrent validity-compared with IRLS total score and the SF-36 mental components summary (MSC). |
Language | English |
Translations in other languages (if yes, then list the languages) | Turkish,6 Hindi,7 Korean.8 See website for additional languages: Spanish, French, etc.9 |
Developer name | Richard P Allen, MD |
Developer contact information | MAPI Research Trust, 27 rue de la Villette, F - 69003 LYON, PROinformation@mapi-trust.org Corresponding author2: Linda.Abetz@mapivalues.com |
Availability of questionnaire: needs permission from developer, cost or freely available | RLSQoL is available on request from Mapi Values; free for academic research. |
Limitations | Needs longitudinal validation. |
Link to the questionnaire (if available) | |
Other comments |
Patient reported questionnaire relating to life experiences over past 4-week period. RLSQoL distinguished between groups with mild, moderate, and severe symptoms, and was also able to distinguish improved or worsened symptoms over a 2 week period. |
References (original publication) |
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Updated by | Hanna Hong |
The last date of update | March 2021 |